Archive for the ‘News’ Category

Health literacy problems of kidney patients

A new article by Prof. Raymond Vanholder, EKHA’s President, and Prof. Norbert Lameire, former EKHA’s Chairman, reviews correlations between health literacy (HL) levels in patients with Chronic Kidney Disease (CKD) and patient’s outcomes. HL is an important aspect of the lives of CKD patients because of the complexity of self-care required to overcome the complications of their medical condition.

Findings show that HL levels are associated with age, education, ethnicity and socio-economic status. Furthermore, the HL-tailored intervention strategies analysed here were unable to detect significant long-term behaviour changes that could improve health outcomes in CKD patients. In addition, a strong relation was found between low health literacy (LHL), smoking and suboptimal transplant process.

The article concludes that it is essential to use a language that facilitates effective communication between health professionals and patients when developing comprehensive patient-centred care plans. Successful communication depends to a large extent on patient’s HL level, thus there is a need to include this aspect in the training of healthcare professionals.

Read the full article here.

Roadmap for Organ donation and transplantation: a multi- stakeholder call to action

Although Europe is a leader in organ donation and transplantation, compared to other continents, major discrepancies remain between countries in terms of transplantation activity. This Roadmap, was produced by the EKHA-led Thematic Network on Organ Donation and Transplantation and is based on the Joint Statement on the same subject, published in 2019. It builds on previous work to provide 12 key areas and specific measures to promote transplantation; offering a framework that can be implemented by EU countries to increase transplantation rates. Achieving a successful EU transplantation programme requires coordination between Member States, improved education in patients, professionals, and the general population, and the provision of suitable legal and financial frameworks. In parallel, an increase in donation rates across the EU is needed, which cannot be achieved without a simultaneous investment in infrastructure, the implementation of approaches to overcoming financial barriers, and educational efforts. EKHA strongly encourages EU policy makers to build on these recommendations to come up with a second EU Action Plan on Organ Donation and Transplantation.

Read the Roadmap here

Save the date! European Kidney Forum 2021: Unmet needs & challenges in access to treatments in Europe: The case of Chronic Kidney Disease

 

The 2021 European Kidney Forum will take place on the 18th June 2021 from 10:30 to 12:00 CEST. The MEP Group for Kidney Health and the European Kidney Health Alliance (EKHA) look forward to the insightful discussions that will emerge from the theme “Unmet needs & challenges in access to treatments in Europe: The case of Chronic Kidney Disease”.

This year’s Forum is organised as part of the Decade of the Kidney™ campaign, an EKHA-led initiative that aims to put the spotlight on Kidney Disease at EU level for the next ten years.

This event will focus on tackling the challenges of access to all types of kidney disease treatments in Europe, such as home-dialysis, transplantation and secondary prevention to combat Chronic Kidney Disease (CKD) progression. Long-standing challenges in the access to CKD treatments have been worsened by the COVID-19 pandemic. In addition, we will explore how to mitigate the negative impact of COVID-19 on access to kidney care and promote information and education about different treatment options to both health professionals and patients. Speakers include:

  • Stella Kyriakides, European Commissioner for Health and Food Safety, DG SANTE
  • Hilde Vautmans, Chair of the MEP group for Kidney Health
  • Manuel Pizarro, Vice-Chair of the MEP group for Kidney Health
  • Stefan Schreck, Advisory for stakeholder relations, DG SANTE
  • Lieven Annemans, Senior Professor of Health Economics, Ghent University
  • Jan De Maeseneer, Professor in Family Medicine and Primary Care, Ghent University
  • Raymond Vanholder, EKHA President
  • Jeanette Finderup, Clinical nurse specialist, European Dialysis and Transplant Nurses Association/European Renal Care Association
  • Daniel Gallego, President of the European Kidney Patients’ Federation
  • Henning Søndergaard, Patient Advocate, Danish Kidney Association

 

Register Here   View the Agenda

 

 

The European Kidney Forum 2021 is made possible by the sponsorship of:

Unmet needs & challenges in access to treatments in Europe – The case of Chronic Kidney Disease

 

This year’s Forum is organised as part of the Decade of the Kidney™ campaign, an EKHA-led initiative that aims to put the spotlight on Kidney Disease at EU level for the next ten years. The event will focus on addressing the challenges of access to all types of kidney disease treatments in Europe, including home-dialysis, transplantation and secondary prevention to combat CKD progression. In addition, the event will explore how to mitigate the negative impact of COVID-19 on access to kidney care and promote information and education about different treatment options to both health professionals and patients.

Speakers include:

  • Stella Kyriakides, European Commissioner for Health and Food Safety, DG SANTE
  • Hilde Vautmans, Chair of the MEP group for Kidney Health
  • Manuel Pizarro, Vice-Chair of the MEP group for Kidney Health
  • Stefan Schreck, Advisory for stakeholder relations, DG SANTE
  • Lieven Annemans, Senior Professor of Health Economics, Ghent University
  • Jan De Maeseneer, Professor in Family Medicine and Primary Care, Ghent University
  • Raymond Vanholder, EKHA President
  • Jeanette Finderup, Clinical nurse specialist, European Dialysis and Transplant Nurses Association/European Renal Care Association
  • Henning Søndergaard, Patient Advocate, Danish Kidney Association
 
 

The Vascular Access Handbook For People With Kidney Disease is now available

The final edition of the Vascular Access Handbook For People With Kidney Disease, endorsed by EKHA, is now available on the Spanish Multidisciplinary Vascular Access Group (GEMAV) website.

This Handbook, written by GEMAV in collaboration with the Spanish National Federation of Associations for the Fight Against Kidney Diseases (ALCER) and the Catalan Kidney Patients’ Association (ADER), aims to provide Kidney Disease patients with simple and clear information on vascular access for haemodialysis, so that they can resolve any doubts they may have and find answers to their questions.

Read the English short and full versions here and here.