The European Kidney Patients’ Federation (EKPF) new publication ‘Living better with CKD – improving the quality of life of CKD patients on dialysis across Europe’ discusses the devastating impact of advanced stage kidney disease on the quality of life of patients. In doing so, it provides three recommendations to European policymakers for changes that could improve the quality of life of individuals on dialysis.
1- Introduce disease-specific quality of life indicators, including
patient-reported outcomes measures and patient-reported experience measures, as a key measure of success in dialysis care;
2- Establish a Dialysis Quality Guarantee to ensure all patients
receive high-quality dialysis care in countries where dialysis is fully establised;
3- Support healthcare professionals (physicians and nurses) to
focus on improving quality of life.
Read the paper here.