Archive for October, 2020

REGISTER NOW! EKHA Webinar: “Towards a resilient and patient centered approach to kidney care in Europe – Learning from the COVID-19 pandemic and harnessing future preparedness”.

 

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EKHA is pleased to announce its upcoming webinar: “Towards a resilient and patient centered approach to kidney care in Europe – “Learning from the COVID-19 pandemic and harnessing future preparedness” taking place on Tuesday 27 October from 10:00 to 11:45.

As Europe’s healthcare systems face unprecedented challenges against the backdrop of COVID-19, our webinar aims to explore sustainable and cost-effective solutions to improve prevention, treatment and care of Chronic Kidney Disease (CKD) whilst raising awareness of the substantial burden experienced by CKD patients as a result of the outbreak.

The event will bring together EU policy makers, health professionals, academics & patients to highlight and discuss the following themes:

  • The heavy toll taken by CKD patients as a result of the outbreak and the link between COVID-19 and kidney failure,
  • The potential of home-therapies & digitalization for kidney care,
  • The importance of harmonizing and sharing health data at EU level,
  • The necessity to reduce the CKD burden and improve COVID-19 outcomes through prevention strategies & adequate funding for innovative Renal Replacement Therapies.

The discussions of the webinar will form the basis for a multi-stakeholder call to action on kidney health that will be published in November, as a follow-up of the EKHA open letter to EU policy-makers on CKD prevention, treatment and care in the aftermath of COVID-19.

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This webinar is organised with the support of

EKHA contribution to the hearing of the ‘Expert Panel on effective ways of investing in health’

On 20th October 2020, the European Commission will hold a Hearing of the “Expert Panel on effective ways of investing in health” on the organization of resilient health and social care following the COVID-19 pandemic.

By means of input, EKHA has drafted a position paper on the heavy toll taken by Chronic Kidney Disease (CKD) patients as a result of the outbreak, the lessons learnt from this crisis and potential solutions to improve kidney care in the context of healthcare systems resilience. Marion Bracks, a kidney patient, will represent EKHA during the hearing.

EKHA input on the new EU pharmaceutical strategy

Over the summer, EKHA has sent its contribution to the public consultation on the EU pharmaceutical strategy. The European Commission is expected to launch its new strategy to improve and accelerate patients’ access to safe and affordable medicines and to support innovation in the EU pharmaceutical industry by the end of 2020.

Chronic kidney disease (CKD) is becoming a worrying health threat to the European society. CKD does not only augment the risk of developing End Stage Kidney Disease (ESKD) and the need for dialysis or transplantation but also significantly contributes to early death by increasing the burden of cardiovascular disease and diabetes mellitus type 1. Adequate treatment options are lacking or are not tailored to the needs of kidney patients. EKHA is calling for ambitious action to improve the availability and affordability of innovative drugs and devices for the treatment of kidney failure.