Archive for April, 2018

2018 European Kidney Forum: Donation & Transplantation – The gift of life

EKHA held its 2018 European Kidney Forum on 26 April in Brussels. Organized under the auspices of the MEP Group for Kidney Health, the event gathered representatives from the European Commission and Parliament, patient associations, kidney doctors and representatives from the private sector to take stock on kidney transplantation in the EU and to discuss next steps on the matter.

The event featured speeches from MEP Hilde Vautmans (Belgium) and MEP Karin Karin Kadenbach (Austria), Stefaan Van der Spiegel from European Commission’s DG Sante, Prof Rainer Oberbauer from the European Society for Organ Transplantation, Dr Vianda Stel from the ERA-EDTA Registry, and Fiona Loud from Kidney Care UK.

Key learnings from discussions at the 2018 European Kidney Forum:

  • There are disparities in access to kidney transplantation across Europe;
  • The European Commission could play a greater role to foster increased cooperation, exchange of best practices between Member States while monitoring safety and quality standards;
  • A number of initiatives (FOEDUS Joint Action, EDITH and EUDONORGAN projects), driven by the European Commission are currently gathering data on the varying landscapes with regards to organ donation and transplantation across member states: how does access to organ donation differ amongst EU countries, how is choice of treatment modalities (dialysis vs. transplantation) made, what is the impact of these differences on health expenditures and patient outcomes, etc.
  • Increased education and awareness amongst donors AND patients is crucial to boost donation levels;
  • Actions at national level should be adopted to encourage donations (incl. financial support to donors and patients, formal recognition of donors, widening of selection criteria for recruitment and registration, etc.)

EKHA launched its Call to Action, developed as part of the Gift Of Life campaign aimed to raise awareness on the need for a coordinated approach at EU level towards organ donation and transplantation. See more here.

Access the event’s presentations here.

Download the full 2018 European Kidney Forum report here

EKHA European Kidney Forum : Plan to attend!

There is still time to register your participation at this year’s European Kidney Forum which will take place on 26 April 2018 at 4.30 in the European Parliament in Brussels.

Organized each spring by EKHA and the MEP Group for Kidney Health, the European Kidney Forum 2018 is themed: Kidney Donation and Transplantation: The Gift of Life.

With this event, EKHA aims to stimulate action at national and European level towards increasing availability and uptake of kidney transplantation in Europe.

The event will gather representatives from the European Commission’ Health Directorate General (DG Santé), the European Society for Organ Transplantation, the ERA-EDTA, national patient organisations, and of course, the European Parliament with MEPs Hilde  Vautmans (Belgium) and MEP Karin Kadenbach (Austria) opening and closing the forum.

The planned presentations and follow-up discussion will allow for an exchange of views on key issues related to organ donation in Europe today: overview of the situation of transplantation in Europe from the transplant physicians’ viewpoint, the work of the European Commission on the matter, the different systems in place in Member States with regards to organ donation from deceased people (opt-in vs opt-out systems), the patients’ viewpoint, etc. In addition, early data results on the EDITH* project will also be shared by a representative from ERA-EDTA.

A networking Cocktail & Dinner in the Members’ Salon will follow the discussion. Plan to attend!

View the programme here

Click here to register

If you have any questions, please contact info@ekha.eu

Focus on the EDITH Project

Started on 1st January 2017 with funding from the European Commission under the 3rd Health Programme, the EDITH project is based on the realization that different treatment modalities are currently used throughout the EU for End Stage Kidney Disease (ESKD). It aims to examine the factors that influence the different treatment choices and the impact of the differing CKD treatment modalities, organ donation and transplantation practices on health expenditures and patient outcomes.

The project is subdivided into six closely interlinked work packages covering – amongst others –  the analysis of epidemiology and costs of different treatment modalities for end-stage kidney disease, analyses on health care budgets, set up of a European Living Donor Registry and a European Kidney Transplant Registry for the follow-up of living donors and transplant recipients, respectively. In addition, to understand the reasons for the differences in the number of patients with a particular form of dialysis or kidney transplant, surveys are being performed towards patients and nephrologists, the results of which will help examine factors that influence the choice of treatment modalities made by patients and nephrologists.

EDITH is a 36-month project, thus ending 31st December 2019. More information on www.edith-project.eu

Make sure to attend the presentation of the initial EDITH ouctomes at EKHA European Kidney Forum! Vianda Stel, PhD at the ERA-EDTA Registry, one of the 10 consortium members will update us on the status of the project and share initial outcomes.

Register here.

World Kidney Day 2018: A Call to Action

In line with this year’s theme “Kidneys & Women’s Health: Include, Value, Empower”, a Call to Action was published by World Kidney Day and the Taskforce on Women and Non-Communicable Diseases* to raise awareness on kidney disease in women. The call aims to highlight the impact of kidney disease on women’s health and the urgent need for targeted, gender-sensitive prevention and treatment throughout the lifecycle of girls and women. More specifically, WKD and Women and NCDs call for policies to be implemented in order to :

  • improve maternal and fetal health outcomes in women with and without pre-existing kidney disease
  • improve women’s access to kidney care
  • reduce the risk of kidney disease in women.

Such policies relate to public health measures, care and research programs, financial mechanisms, patient education, etc.

We, as EKHA, join our voices to this call to action and highlight the importance of targeted measures for women and girls in relation to kidney disease.

To view the call to action, click here.

*The Taskforce on Women and Non-Communicable Diseases was launched in 2011 to respond to the unique and growing burden of NCDs on women in LMICs. The Taskforce brings together leading global health organisations from the women’s health and NCD communities to improve women’s health by expanding programmes to meet women’s needs throughout the lifecycle

More information: http://www.womenandncds.org/

For more information on World Kidney Day 2018, visit: http://www.worldkidneyday.org/

Learning about Kidney Disease over a pint: get inspired by the UK initiative!

On 14-16 May, Kidney Research UK, the leading charity dedicated to research into kidney disease in the UK is for the second year in a row, partnering with the “Pint of Science Festival”, an international science festival bringing together leading scientists and researchers to local pubs, so people can discover and learn about science over a pint. Researchers from all over the country – 32 cities are participating this year – will address their “special” audience by sharing updates on the research currently being carried out on the kidney. Fascinating speeches will be delivered about the kidney, how it works, what happen when it fails, pregnancy and kidney disease, and much more!

More about the Science over a Pint Festival: https://pintofscience.co.uk/

About Kidney Research UK: http://www.kidneyresearchuk.org

Source: https://www.kidneyresearchuk.org/news/pint-of-science-takes-a-look-at-all-things-kidney